advocacy – Delight in Disorder

Hope for Troubled Minds: A Tribute to James Mark Rippee from his “Twisted” Twin Sisters

As an American Curbside Caregiver and SMI/SBD Advocate Linda Rippee Privatte supports her disabled blind brother with a serious brain disorder who has gone untreated for 34 years. Since then, he has been homeless for 14 years. She is one of two twin sisters who advocates for change in the United States, also known as 'Twin Tag Team' and more recently as Twisted Sisters Advocacy & Activism for Serious Brain Disorders. They each do things the other cannot. Her twin, Catherine, is skilled at social media awareness, advocacy, and education, but Linda is the last family member capable of reaching Mark on the streets and providing him with the necessities of life. To my younger and only brother, Mark; I grew up believing that love could fix anything…that love conquers all. That love would carry us through any situation. I believed that family never gives up on family. I [...]

Hope for Troubled Minds: A Tribute to James Mark Rippee from his “Twisted” Twin Sisterstonyroberts2022-11-30T19:54:42-05:00

Hope for Troubled Minds: A Prayer to be Rooted in Love by Nancy Boucher

Nancy Boucher is the ninth of thirteen children born into a first generation Italian American family. The importance and value of family has been an enduring force in her life. She taught special education for 24 years in public schools, starting programs for children with behavioral challenges. Her responsibilities included screening, observation, and evaluation; developing and implementing goals with students; consulting with teachers, administrators, and parents; and providing in-service assistance to staff. She loved my job, and was always attentive to and thankful to each of her students who taught her how to become a better teacher. She is well aware of the challenges facing families and their children when dealing with a serious condition, not yet totally understood. Twenty four years ago her youngest son got sick with a serious mental illness and her family's life as they knew it veered off course. They were catapulted into a wilderness [...]

Hope for Troubled Minds: A Prayer to be Rooted in Love by Nancy Bouchertonyroberts2022-02-27T15:31:56-05:00

Hope for Troubled Minds: A Mother’s Deepening Love Through Struggles

Diane Rabinowitz retired in 2018 from a lifelong career as a teacher. She grew up in New York, but except for a short stint in North Carolina and ten years in Kentucky, has lived the majority of her life in California. She has wide-ranging interests in health, the arts, and fitness, but her main focus since moving from Los Angeles to a small town in Northern California is to make her community more hospitable for the homeless and those with serious mental illness. She has been developing friendships and working relationships with anyone who is similarly devoted so we can create better care for the most vulnerable. Her life-long devotion to Buddhist practice sustains her. Dear Tariq, I want to tell you how much I love you, and how happy I am that you are finally in a care situation where you have recovered much of your self. In [...]

Hope for Troubled Minds: A Mother’s Deepening Love Through Strugglestonyroberts2022-02-06T18:00:47-05:00

Profiles in Advocacy – Janet Hays, Reimagining the Office of Sheriff

Janet Hays is reimagining the office of sheriff and has proven experience putting vision into practice. She is a New Orleans resident and national leader in the advocacy movement for those impacted by serious brain illnesses. In her work with Healing Minds NOLA and Mental Illness Policy Org she is putting broken bones together and breathing life into them. Now she is running for Sheriff in her Orleans parish. Kathy Day, Senior Family Liaison at Treatment Advocacy Center calls Hays, “... a passionate advocate who works harder than anyone I know. Her persistence often pays off in ways that help families dealing with serious and persistent brain illnesses.” Leslie Carpenter, a leading advocate for people with no fault serious brain diseases, cites the Zoomcast series Hays produced in 2020 and into 2021 as, “... one of the best compilations of both what is wrong with the present system and... what [...]

Profiles in Advocacy – Janet Hays, Reimagining the Office of Sherifftonyroberts2021-10-14T14:03:34-04:00

From Mental Illness to MBA by John Witcher

Living with a mental illness is very challenging and can be very frustrating. In 1994, when I was diagnosed, the culture surrounding mental illness was much different. Many of the support groups were not as easy to access, due to technology limitations. The internet was not as user friendly, if you had it at all. When you were the person in the room with a mental illness, you typically kept it to yourself, and it was suggested that you do not disclose. With the help of organizations like NAMI, SARDAA, APSE, Vocational Rehabilitation, KEY and many others, mental health is becoming something that is easier to discuss, when in the past, it was not. In 2017, I received an MBA with honors, from IndianaTech. I remember, in the 1990’s, when I was considering going back to college, I got a great deal of pushback. I heard countless times, that it was a crazy thought. Then, I approached my [...]

From Mental Illness to MBA by John Witchertonyroberts2021-01-06T07:32:34-05:00

The New Asylums: A Dialogue on Mental Illness Behind Bars

I have been aware of the prevalence of persons with mental illness who are incarcerated. I also know first-hand how quality in-patient psychiatric care has all but disappeared. Still, this chart portrays the crisis of mental health care in our nation. And, from the numbers I've seen, it's only getting worse. What follows is a dialogue that took place in perhaps the best Facebook groups I belong to: Advocates for People with Mental Illness. I wish these folks were in policy-making posts rather than the ones we currently have. J: Neither peak seems to be healthy, at least not long term. I wonder where the curve would be in a good system. D: The community health care system that was promised after institutions closed is a dignified response to caring for people who live with mental illness. Much cheaper than institutions and so much more effective and respectful. [...]

The New Asylums: A Dialogue on Mental Illness Behind Barstonyroberts2020-04-16T14:10:02-04:00

Advocates for People with Mental Illness: Laura Pogliano

In my search for the latest and greatest information and support for persons with mental illness (MI) , I ran across a Facebook site called, "Advocates for People with Mental Illness." I quickly came to know this site was unique: sensitive to the stories of individuals and families afflicted by MI, but also containing provocative reflections and proactive links to research and legislation at the cutting edge of the field. I reached out to Laura Pogliano, an administrator for the site and she agreed to do an interview. My words are in italics. What drew you into the field of mental health advocacy? Well, the human psyche is itself interesting, but primarily my son became suddenly ill with psychosis and paranoia in the summer of 2008. By 2010, I was understanding how important advocacy was, not only for my son, but for others. I was very upset with a [...]

Advocates for People with Mental Illness: Laura Poglianotonyroberts2018-12-22T18:16:09-05:00